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But the people dealing with a rare disease were far

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MAY 7 JOHN KAMPES; for his dedication to local youth sports. Kampes is a coach for multiple youth baseball teams in the community, and he is also the executive director for the Cecil County YMCA. He was critically injured in a car accident last year and has been committed to getting back on the field with his teams this spring in order to continue to be a great role model and mentor for his players.

Some would tell him to make sure he had a back up plan. Some would be openly skeptical. Others would give him a look that said, they didn’t believe him, but didn’t want to be the one to say it. But the people dealing with a rare disease were far more likely to have honed their searching, learning, and networking skills to Olympian levels. The majority of them are connected to peers online. “We can say things to each other we can’t say to others,” one woman living with a blood disorder wrote in the survey.

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